Stanford Center for
Biomedical Ethics

Publications

Agarwal A, Sayres LC, Cho MK, Cook-Deegan R, Chandrasekharan S. (2013). Commercial landscape of noninvasive prenatal testing in the United States. Prenatal Diagnosis 33: 521 - 531.

Allyse M, Sayres LC, Goodspeed TA and Cho MK. (2014). Attitudes towards non-invasive prenatal testing for aneuploidy among US adults of reproductive age. Journal of Perinatology. doi:10.1038/jp.2014.30.

Allyse M. (2013). 23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent. Trends in Biotechnology 31 (2): 68-9.

Allyse M, Karkazis K, Lee SS, Tobin SL, Greely HT, Cho MK, Magnus D. Informational risk, institutional review, and autonomy in the proposed changes to the common rule. IRB. 2012 May-Jun; 34 (3): 17-9

Allyse M, Sayres LC, King JS, Norton ME, Cho MK. (2012) Cell-free fetal DNA testing for fetal aneuploidy and beyond: Clinical integration challenges in the United States context. Human Reproduction.

Allyse, M. A., Sayres, L. C., Havard, M., King, J. S., Greely, H. T., Hudgins, L.,Taylor, J., Norton M.E. Cho, M.K., Magnus, D., Ormond, K. E. (2013). Best ethical practices for clinicians and laboratories in the provision of non-invasive prenatal testing. Prenatal diagnosis.

Allyse M, Milner L, and MK Cho. G.I. Genome: Ethical Implications of Genome Sequencing in the Military. Nature Reviews Genetics, 2011: 12(589).

Allyse M and Michie M. 2013. Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing. Trends in Biotechnology.

Ashfaq M, Amanullah, F, Ashfaq A, Ormond KE. (2013). “The views of Pakistani doctors Regarding Genetic Counseling Services-Is There a Future?” J Genetic Counseling Published online March 29, 2013.DOI: 10.1007/s10897-013-9578-2

Aspinwall L, Brown T, and Tabery J. The Double-Edged Sword: Does Biomechanism Increase or Decrease Judges' Sentencing of Psychopaths? Science 17 August 2012, Vol. 337 no. 6096: 846-849.

Ashley E.A., Butte A., Wheeler M.T., Chen R., Klein T., Dewey F., Dudley J., Ormond
KE.
, Pavlovic A., Hudgins L., Gong L., Hodges L., Berlin D., Thron C., Sangkuhl K.,
Hebert J., Woon M., Sagreya H., Whaley R., Morgan A., Pushkarev D., Neff N.,
Knowles J., Chou M., Thakuria J., Rosenbaum A., Zarenek A., Church G., Greely H.,
Quake S., Altman, R.B.  (2010).  Clinical evaluation incorporating a personal
genome.  Lancet 375: 1525-35.

Bardill JD, Garrison NA. (In Press) Genetic Ancestry Testing. International Encyclopedia of Social and Behavioral Sciences, 2nd ed.  Graciela Cabana, section editor. Forthcoming 2015.

Berryessa CM. (In Press). Judiciary Views on Criminal Behaviour and Intention of Offenders with High-Functioning Autism. Journal of Intellectual Disabilities and Offending Behaviour. Vol. 5, Issue 1.

Berryessa CM. (2014). Judicial Perceptions of Media Portrayals of Offenders with High Functioning Autistic Spectrum Disorders. International Journal of Criminology and Sociology Vol. 3: 46-60.

Berryessa CM and MK Cho. (2013). Ethical, Legal, Social, and Policy Implications of Behavioral Genetics. Annual Review of Genomics and Human Genetics Vol. 14: 515-534.

Berryessa CM, Nicole Martinez-Martin and Megan Allyse. (2013). Ethical, Legal and Social Issues Surrounding Research on Genetic Contributions to Antisocial Behavior. Aggression and Violent Behavior Vol. 18, No. 6: 605-610.

Borgelt E, Dharamsi S, and Scott CT (2013). Dear Student: Stem Cell Scientists' Advice to the Next Generation. Cell Stem Cell 12(6):652-655.

Brown, M.J., and M.W. Feldman. Sociocultural epistasis and cultural exaptation in footbinding, marriage form, and religious practices in early 20th century Taiwan. Proc. Natl. Acad. Sci. USA, 2009. 106: 22139–22144.

Brown T. and K. Lowenberg. Biobanks, privacy, and the subpoena power. Stanford Journal of Science Policy and Law, forthcoming.

Brown T.R. and E.R. Murphy. Through a scanner darkly – functional neuroimaging as evidence of a criminal defendant’s past mental states. Stanford Law Review, 2010. 62: 1119-208.

Butte A.J. and I.S. Kohane. Creation and implications of a phenome-genome network. Nat Biotechnol, 2006. 24(1):55-62.

Caulfield T, Evans J, McGuire A, McCabe C, Bubela T... Cho M, et al. (2013) Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate. PLoS Biol 11(11): e1001699. doi:10.1371/journal.pbio.1001699

Caulfield T., Scott C.T., Hyun I., Lovell-Badge R., Kato K., Zarzeczny A. Nat Methods, 2010. 7(1):28-33.

Caulfield T., Fullerton S.M., Ali-Khan S.E., Arbour L., Burchard E.G., Cooper R.S., et al. Race and ancestry in biomedical research: exploring the challenges. Genome Med, 2009. 1:8.

Caulfield T., McGuire A.L., Cho M., Buchanan J.A., Burgess M.M., Danilczyk U., et al. Research ethics recommendations for whole genome research: consensus statement. PLoS Biol, 2008.6(3):e73.

Subhashini Chandrasekharan, Mollie A. Minear, Anthony Hung, and Megan Allyse. (2014). Noninvasive Prenatal Testing Goes Global. Sci Trans Med. DOI:10.1126/scitranslmed.3008704.

Chang W, Bank TC, Scott CT (2014) Fit to Print? Media Accounts of Unproven Medical Treatments Across Time. AJOB Empirical Bioethics, 5(1):33-43.  

Chipp C, Dewane S, Brems C, Johnson ME, Warner TD, and LW Roberts. "If only someone had told me...": Lessons from rural providers. Journal of Rural Health 2011 Winter; 27(1):122-130.

Cho, M.K. (2014). Open-Label Extension Studies: Are They Really Research?, The American Journal of Bioethics, 14:4, 60-61, DOI: 10.1080/15265161.2014.889958

Cho, M.K. and M.N. Wolpert. Not yet in sequence: Clinical, technical, ethical questions linger over personal genomics. Modern Healthcare, 2010. November 22, p. 24.

Cho, M.K. Patently unpatentable: Implications of the Myriad court decision on genetic diagnostics.Trends in Biotechnology, 2010. 28(11):548-51.

Cho, M.K. and Relman, D. Synthetic “life”, ethics, national security and public discourse.  Science, 2010. 329: 38-39.

Cho M.K., Sabeti P.C. and S.A. Tishkoff. Ethical and social implications of research on natural selection in humans. Trends Genet, in press.

Cho M.K. Understanding incidental findings in the context of genetics and genomics. J Law Med Ethics, 2008. 36(2):280-25.

Cho M.K. Translating genomics into the clinic: moving to the post-Mendelian world. Genome Med, 2009. 1:7.

Cho M.K., Tobin S.L., Greely H.T., McCormick J., Boyce A. and D. Magnus. Research ethics consultation: the Stanford experience. IRB: Ethics & Human Research, 2008. 30(6):1-6.

Cho M.K., Tobin S.L., Greely H.T., McCormick J., Boyce A. and D. Magnus. Response to open peer commentaries on "Strangers at the benchside: research ethics consultation." Am J Bioeth, 2008. 8:4-6.

Cho M.K., Tobin S.L., Greely H.T., McCormick J., Boyce A. and D. Magnus. Strangers at the benchside: research ethics consultation. Am J Bioeth, 2008. 8(3): 4-13.

Cho M.K. Racial and ethnic categories in biomedical research: There is no baby in the bathwater. Am J Law Med Ethics, 2006. 34(3):497-9.

Cho M., McGee G., and D. Magnus. Lessons of the stem cell scandal. Science, 2006. 311:614-5.

Coop, G., Pickrell J.K. , Kudaravalli S., Novembre J. , Li J., Absher D., Myers R.M., Cavalli-Sforza L.L., Feldman M.W., and J.K.  Pritchard. The role of geography in human adaptation. PLoS Genet., 2009. 5(6): e1000500.

Crawley L.M. Having a say: Agency and end-of-life decision-making in The Chaneysville IncidentJournal of General Internal Medicine, 2010 May 7. [Epub ahead of print] PMID: 20449684

Crawley, L.M., Hisaw, L.D.,  Illes, J.  Direct-to-consumer advertising in black and white: Racial differences in placement patterns of print advertisements for health products and messages.  Health Marketing Quarterly 2009; 26(4):279-92.

Crawley L.M., Ahn D.K. and M.A. Winkleby. Perceived medical discrimination and cancer screening behaviors of racial and ethnic inority adults. Cancer Epidemiol Biomarkers Prev, 2008. 17(8):1937-44.

Crawley L.M. The paradox of race in the Bidil® debate. J Natl Med Assoc, 2007. 99(7):821-2.

Daneshjou R, Zappala Z, Kukurba K, Boyle SM, Ormond KE, Klein TE, Snyder M, Bustamante CD, Altman RB, Montgomery SB. (2014) Path-scan: a reporting tool for identifying clinically actionable variants. Pac Symp Biocomput. 19:229-40.

Devers P, Cronister A, Ormond KE, Facio F, Brasington CK, Floodman P. (2013). “Noninvasive prenataltesting/noninvasive prenatal diagnosis: the position of the National Society of Genetic Counselors” published online Jan 2013, J Genet Counseling 22(3): 291-5. DOI:10.1007/s10897-012-9564-0

DuBois J, Bailey-Burch B, Bustillos D, Campbell J, Cottler L, Fisher C, Hadley WB, Hoop JG, Roberts LW, Salter EK, Sieber JE, and RD Stevenson. Ethical Issues in Mental Health Research: The Case for Community Engagement. Current Opinion in Psychiatry 2011; 24:208-214.

Dudley J. and A.J. Butte. Enabling integrative genomic analysis of high-impact human diseases through text mining. Pac Symp Biocomput, 2008:580-591.

Dudley J., Chen D.P., andA.J. Butte. Using SNOMED-CT for translational genomics data integration. In Representing and sharing knowledge using SNOMED; Proceedings of the 3rd international conference on Knowledge; Representation in Medicine (KR-MED 2008). Eds. R. Cornet and K.A. Spackman.

Duggan P., Siegel A.W., Blass D.M., Bok H., Coyle J.T., Faden R., Finkel J., Gearhart J.D., Greely H.T., Hillis A., Hoke A., Johnson R., Johnston M., Kahn J., Kerr D., King P., Kurtzberg J., Liao S.M., McDobnald J.W., McKhann G., Nelson K.B., Rao M., Regenberg A., Smith K., Solter D., Song H., Sugarman J., Taystman R.J., Avescovi, Young W., and D.J.H. Mathew. Unintended Changes in Cognition, Mood, and Behavior Arising from Cell-Based Interventions for Neurological Conditions: Ethical Challenges. AJOB: Neuroscience, 2009. 9(5):31-36.

Dunn LB, Holtzheimer III PE, Hoop JG, Mayberg H, Roberts LW, and PS Appelbaum. Ethical issues in deep brain stimulation research for treatment-resistant depression: Focus on risk and consent. AJOB Neuroscience 2011; 2:29-36.

Dunn LB, Fisher SR, Hantke M, Appelbaum PS, Dohan D, Young JP, and LW Roberts. “Thinking about it for somebody else”: Alzheimer’s disease research and proxy decisionmakers’ translation of ethical principles into practice. (accepted) American Journal of Geriatric Psychiatry 2011.

Erickson JA, Kuzmich L, Ormond KE, Gordon E, Christman M., Cho MK, and Levinson DF. (2014). Genetic Testing of Children for Predisposition to Mood Disorders: Anticipating the Clinical Issues. Journal of genetic counseling, 1-12.

Erickson JA and MK Cho. Interest, rationale, and potential clinical applications of genetic testing for mood disorders: A survey of stakeholder. Journal of Affective Disorders 2012.

Erickson JA and MK Cho. Ethical Considerations and Risks in Psychiatric Genetics: Preliminary Findings of a Study on Psychiatric Genetic Researchers. AJOB Primary Research 2011;2(4):52-60.

Fanos JH. New "first families": the psychosocial impact of new genetic technologies. Genet Med., 2012;14(2):190-90.

Fanos JH, Gronka S, Wuu J, Stanislaw C, Andersen PM, and M Benatar. Impact of Pre-Symptomatic Genetic Testing for Familial Amyotrophic Lateral Sclerosis.  Genet Med., 2011;13(4):342-8.

Fanos J.H., Wiener L., Brennan T. Potential impact of genomic information on childhood sibling relationships in Handbook of Genomics and the Family (ed. K.P. Tercyak, Springer, 2010).

Fanos J.H., Little G.A., Edwards W.H. Candles in the snow: ritual and memory for siblings of infants who died in the intensive care nursery. J Pediatr, 2009. 154(6): 849-53.

Fanos J.H.  "We Kept our Promises": An Autobiography of Harry Shwachman. Am J Med Genet, 2008. 146A(3):284-93.

Fanos J.H., Gelinas D.F., Foster R.S., Postone N., Miller R.G. Hope in palliative care: from narcissism to self-transcendence in amyotrophic lateral sclerosis. J Palliat Med, 2008. 11(3), 470-75.

Farrelly, E, Cho, M, Erby, L, Roter, D, Stenzel, A, and Ormond, K. (in press) Genetic counseling for prenatal testing: where is the discussion about disability? Journal of Genetic Counseling.

Feldman, M.W. The biology of ancestry: DNA, genomic variation, and race. In H.R. Markus and P.M.L. Moya (eds.), Doing Race: 21 Essays for the 21st Century. New York: W.W. Norton, 2010.

Interpreting Complexity, ed. M. Feldman, S.S. Lee, and J. McCormick. in preparation, Oxford: Oxford University Press.

Frueh FW, Greely HT, Green RC, Hogarth S and S Siegel.The Future of Direct-to-Consumer Clinical Genetic Tests. Nature Reviews Genetics 2011; 12:511-515.

Garrison NA, Rohlfs RV, and Fullerton SM. Forensic familial searching: scientific and social implications. Nature Review Genetics. 4 June 2013. doi:10.1038/nrg3519.

Garrison NA. Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research. Science Technology Human Values

Garrison NA, Cho MK. 2013. Awareness and Acceptable practices: IRB and Researcher reflections on the Havasupai Lawsuit. AJOB Primary Research. Forthcoming Spring 2013.

Garrison NA. Cases of How Tribes are Relating to Genetics Research in American Indian & Alaska Native Genetics Resource Center, 2012.

Garrison, NA and Magnus, D. The Instrumental Role of Hospital Ethics Committees in Policy Work. The American Journal of Bioethics 2012, 12:11, 1-2.

Greely HT and Cho MK. The Henrietta Lacks legacy grows. EMBO reports (2013) 14, 849; published online 13 September 2013; doi:10.1038/embor.2013.148.

HT Greely and King, JS. (2010) The coming revolution in prenatal genetic testing.  AAAS Professional Ethics Report 22:1.

HT Greely.Reading Minds with Neuroscience - Possibilities for Law. Cortex (forthcoming 2011).

HT Greely.Get Ready for the Flood of Fetal Gene Screening. Nature 2011; 469:289-291.

HT Greely.Mindreading, Neuroscience, and the Law, in A Primer on Law and Neuroscience (S Morse and A Roskies, eds., Oxford Univ. Press, forthcoming 2011).

Greely HT and AD Wagner.Reference Guide on Neuroscience, in Reference Manual on Scientific Evidence (3rd ed., National Academies Press/Federal Judicial Center, forthcoming 2011).

HT Greely. Human/Nonhuman Chimeras: Assessing the Issues, in Oxford Handbook of Animal Ethics (ed. Tom Beauchamp and R.G. Frey, Oxford Univ. Press, forthcoming 2011).

HT Greely. Of Nails and Hammers:  Human Biological Enhancement and American Policy Tools, in Enhancing Human Capacities (ed. Ruud ter Meulen, Julian Savulescu, Guy Kahane, Wiley Blackwell, April 2011).

HT Greely. Neuroscience and Criminal Responsibility:  Proving "Can't Help Himself" as a Narrow Bar to Criminal Liability, in Law and Neuroscience, Current Legal Issues 2010, Vol. 13 (ed. Michael Freeman, Oxford University Press, 2011).

HT Greely. Law and the Biosciences. The Stanford Lawyer Spring2011 (84).

HT Greely. Time to Raise Some Hell. Gene Watch 2011;24(1):4-5.

Greely H.T. To the Barricades! (editorial), Am J Bioeth, 2010. 10(9):1-2.

Greely H.T. Panel on Collecting, Storing, Accessing, and Protecting Biological Specimens and Biodata in Social Surveys in Conducting Biosocial Surveys: Collecting, Storing, Accessing, and Protecting Biospecimens and Biodata (eds. Robert M. Hauser, Maxine Weinstein, Robert Pool, and Barney Cohen; National Academies Press, Washington, D.C. 2010).

Greely H.T. and King, J.S. The Coming Revolution in Prenatal Genetic Testing, Professional Ethics Report, 2010. 23(2):1-3.

Greely H.T. From Nuremberg to the Human Genome: The Rights of Human Research Participants in Medicine After the Holocaust: From the Master Race to the Human Genome and Beyond (ed. Sheldon Rubenfeld, Palgrave, New York 2010).

Greely H.T. "Who Knows What Evil Lurks in the Hearts of Men?": Behavioral Genomics, Neuroscience, Criminal Law, and the Search for Hidden Knowledge, in The Impact of Behavioral Sciences on the Criminal Law, N. Farahany, Editor. 2009, Oxford University Press.

Greely H.T. How Will We Handle the Rapidly Approaching Flood of Genomic Information on Individual Patients and Consumers? Genomics Law Report October 5, 2009

Greely H.T. How Should We Deal with the Arrival of Very Common Prenatal Testing for a Broad Set of Genetic Characteristics?  Genomics Law Report November 17, 2009.

Greely H.T. Collecting Biomeasures in the PSID:  Ethical and Legal ConcernsBiodemography and Social Biology, 2009. 55(2):270- 288.

Greely H.T. Law and the Revolution in Neuroscience:  An Early Look at the Field, Akron L. Rev, 2009. 42:687-715.

Greely H.T. Genetic Genealogy: Genetics Meets the Marketplace, in Revisiting Race in a Genomic Age, B.A. Koenig, S.S. Lee, and S.S. Richardson, Editors. 2008, Rutgers University Press: New Brunswick. p. 271-99.

Greely H. The genetics of fear. Democracy, Summer 2008: p. 55-60. 19.

Greely H.T. Within You, Without You, in Imagining Science. T. Caulfield and S. Caulfield, Editors. 2008, Alberta University Press.

Greely H.T. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annu Rev Genomics Hum Genet, 2007. 8:343-64.

Greely H., Cho M., Hogle L., and D. Satz. Thinking about the human neuron mouse. American Journal of Bioethics: Neuroscience. 2007 May/June. 7(5): p. 27-40. 20.

Greely H., Cho M., Hogle L., and D. Satz. Response to peer commentaries. American Journal of Bioethics: Neuroscience, 2007 May/June. 7(5): p. W4-6.

Greely H.T. Knowing Sin: Making Sure Good Science Doesn't Go Bad, in Cerebrum 2007: Emerging Ideas in Brain Science, C.A. Read, Editor. 2007, Dana Press: New York.

Greely H.T. Stanford symposium on preimplantation genetic diagnosis: an introduction - and some conclusions. Fertil Steril, 2006. 85:1631-2. (and edited the four article symposium)

Greely H.T. Neuroethics and ELSI: similarities and differences. Minn J L Sci & Tech, 2006. 7:599-637.

Greely H.T. Electronic transfer of medical records in clinical care and research: an irresistible force meets a moveable object in Biological Material and Electronic Data: Much Ado About Nothing?, B.M. Knoppers and C. Hervé, Editors. 2006, Les Études Hospitalières: Bordeaux. p. 35-50.

Greely H.T., Riordan D.P., Garrison N.A. and J. L. Mountain. Family ties: the use of DNA offender databases to catch offenders' kin. J Law Med Ethics, 2006. 34:248-62.

Greely H.T. Regulating human biological enhancements: questionable justifications and international complications. The Mind, The Body and the Law: University of Technology, Sydney, Law Review. 2005. 7:87-110./Santa Clara J Int'l L, 2006. 4:87-110. (joint issue)

Greely H.T. Banning genetic discrimination. N Engl J Med, 2005. 353(9):865-7.

Greely H.T. Population participation and other factors that impact the compilation and the utility of resulting databases. LA L Rev, 2005. 66:79-90.

Greely H.T. Disabilities, enhancements, and the meanings of sports. Stanford Law & Policy Review, 2004 Spring. 15(2): p. 99-132.

Greely H.T. Genetic modification, review of Designing Our Descendants: The Promises and Perils of Genetic Modifications, Audry R. Chapman, Mark S. Frankel, ed. JAMA, 2004 Sept. 292: p. 1374-5. 23.

Greely H.T. Human genetic enhancement: a lawyer's view, review of Wondergenes: Genetic Enhancement and the Future of Society by Maxwell J. Mehlman. Med Humanit Rev, 2003 Fall. 17(No. 2): p. 42-6. 22.

Green RC, Berg JS, Grody WW, Kalia SS, Korf BR, Martin CL, McGuire A, Nussbaum
RL, O’Daniel JM, Ormond KE, Rehm HL, Watson MS, Williams MS, Biesecker LG.
(2013). “Recommendations of the ACMG for Return of Secondary Findings in Clinical
Exome and Genome Sequencing.” Genet Med 5(7):565-74. DOI: 10.1038/gim.2013.73.
Published online March 21, 2013.

Grove ME, Wolpert MN, Cho MK, Lee S, Ormond KE. Views of Genetics Health Professionals on the Return of Genomic Results. Journal of Genetic Counseling 2013. DOI 10.1007/s10897-013-9611-5.

Havard M, Cho MK, and D Magnus. Triggers for Research Ethics Consultation. Sci Transl Med 2012;4(118).

Havard M and D Magnus. Sexless Reproduction: A status symbol. Am J Bioeth 2011;11(3):1.

Henderson G, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski, Marsha Michie. What Research Ethics Should Learn from Genomics and Society Research: Lessons from the ELSI Congress of 2011. The Journal of Law, Medicine & Ethics, Winter 2004, Volume 40, Issue 4::1008–1024.

Illes J., Kirschen M.P., Edwards E., Bandettini P., Cho M.K., Ford, P.J., et al. Practical approaches to incidental findings in brain imaging research. Neurology, 2008. 70:384-90.

Illes J., Kirschen M.P., Edwards E., Stanford L.R., Bandettini P., Cho M.K., et al. Ethics: Incidental findings in brain imaging research. Science, 2006. 311:783-4.

Illes J., De Vries R., Cho M. and P. Schraedley-Desmond. From genetics to neuroethics: ELSI priorities for brain imaging. Am J Bioeth, 2006. 6(2):W24-31.

Jain S and LW Roberts. Ethical Issues in Psychopharmacology: Implications and Considerations in Clinical Practice. Psychiatric Times 2011; 28(5):50, 51, 54-56.

Jain S, Dunn L, and LW Roberts. Psychiatric Residents’ Needs for Education about Informed Consent, Principles of Ethics and Professionalism, and Caring for Vulnerable Populations: Results of a Multisite Survey. Academic Psychiatry 2011; 35(4):184-190.

Jain S, Warner C, Dunn L, and LW Roberts. The Why, How, and What of Education in Professionalism and Ethics. Academic Psychiatry 2011; 35(4):175-183.

Jordan-Young RM, Sönksen PH, and Karkazis K. (2014). Sex, health, and athletes. BMJ; 348 doi: http://dx.doi.org/10.1136/bmj.g2926.

Kalista T, Freeman HA, Behr B, Reijo Pera R, and CT Scott . Donation of Embryos for Human Development and Stem Cell Research. Cell Stem Cell, 2011; 8(4):360-2.

Karp D.R., Carlin S., Cook-Deegan R., Ford D.E., Geller G., Glass D.N., et al. Ethical and practical issues associated with aggregating databases. PLoS Med, 2008. 5(9): p. e190.

King JS. (2012) And Genetic Testing For All...The Coming Revolution in Non-Invasive Prenatal Genetic Testing 42 Rutgers L. Rev.

Koenig B., Lee S.S. and S.S. Richardson. Introduction, in Revisiting Race in a Genomic Age, B.A. Koenig, S.S. Lee and S.S. Richardson, Editors. 2008, Rutgers University Press: New Brunswick.

Kopelman, N.M., Stone L., Gefel D., Feldman M.W., Hillel J., and N.A. Rosenberg. Genomic microsatellites identify shared Jewish ancestry intermediate between Mediterranean and European populations. BMC Genet. 2009. 10: 80.

Ladd J.M., Lappé M.D., McCormick J.B., Boyce A.M. and M.K. Cho. The "how" and "whys" of research: life scientists' views of accountability. J Med Ethics, 2009. 35(12):762-7.

Laland, K.N., Odling-Smee J., Feldman M.W., and J. Kendal. Conceptual barriers to progress within evolutionary biology. Frontiers of Science, 2009.14: 195–216.

Latchaw M., Ormond K.E., Smith M., Richardson J., Wicklund C. Health
Insurance Coverage of Genetic Services in Illinois. Genetics in Medicine, 2010. Jun
8. [Epub ahead of print].

Lee SS-J, Vernez SL, Ormond K, Granovetter M. Attitudes towards Social Networking and Sharing Behaviors among Consumers of Direct-to-Consumer Personal Genomics. Journal of Personalized Medicine. 2013; 3(4):275-287.

Lee S.S. and S. Vernez. Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations. The American Journal of Bioethics, 2012. 12(4):41-3.

Lee, S. S. 2013. Race, Risk, and Recreation in Personal Genomics: The Limits of Play. Medical anthropology quarterly.

Lee, S. S. 2013. American DNA: the politics of potentiality in a genomic age. Current Anthropology, 54(S7), S77-S86.

Lee S.S. In Search of Difference in the New Genetics: Race, Science and Justice. in preparation, New York: Routledge Press. (book length manuscript)

Lee S.S. Social networking in the age of personal genomics. Saint Louis University journla of Health Policy and Law, 2010.

Lee S.S. The social and ethical implications of pharmacogenomics in Asia. Frameworks of Choice: Predictive Genetic Testing in Asia. Ed. Margaret Sleeboom-Faulkner. University of Amsterdam Press, 2010.

Lee S.S. The ethics of "statistical race" and its implications for health disparities in a genomic age. Current Pharmacogenomics and Personalized Medicine, 2009. 7:238-242.

Lee S.S. The ethics of pharmacogenomics. California Pharmacist, 2009. LVI(4):24-27.

Lee S.S., Bolnick D.B., Duster T., Ossorio P. and K. Tallbear. Genetics: The illusive gold standard in genetic ancestry testing. Science, 2009;325(5936):38-39.

Lee S.S. and L. Crawley. Research 2.0: social networking and DTC genomics. Am J Bioeth. 2009;9(6):35-44.

Lee S.S. and L. Crawley. Response to open peer commentaries on "Research 2.0: social networking and DTC genomics." Am J Bioeth. 2009;9(6):W1-W3.

Lee S.S. and A. Mudaliar. Racing forward: the Genomics and Personalized Medicine Act. Science, 2009. 323(6912):342.

Lee S.S., Mountain J., Koenig B., Altman R., Brown M., Camarillo A., et al. The ethics of characterizing difference: guiding principles on using racial categories in human genetics. Genome Biol, 2008. 9(7): 404.

Lee S.S. Racial Realism: Reframing Disparity into Difference, in Revisiting Race in a Genomic Age, B.A. Koenig, S.S. Lee, and S.S. Richardson, Editors. 2008, Rutgers University Press: New Brunswick.

Lee S.S. The ethical implications of stratifying by race in pharmacogenomics. Clin Pharmacol Ther, 2006. 81(1):122-5.

Lee S.S. The politics of hope: dreaming in a genomic age. Science, 2006. 313:1888-9. (Invited Review).

Lee S.S. Identifying "race" in the new genetics: bio-banks of a kind. Patterns Prejudice. Editor: Sander L. Gilman., 2006. 40(Nos 4, 5):443-60.

Lee S.S., Mountain J. and B.A. Koenig, The Meanings of Race in the New Genomics, in The Social Contributions to Health, Difference and Inequality: The Social Medicine Reader 2nd Edition, Volume II, G.E. Henderson, et al., Editors. 2005, Duke University Press.

Lee S.S. "Racializing drug design”: pharmacogenomics and implications for health disparities. Am J Public Health, 2005. 95(12):2133-8.

Lee S.S. Personalized medicine and pharmacogenomics: ethical and social challenges. Per Med, 2005. 2(1):29-35.

Li, S., Zhang Y., and M.W. Feldman. Birth registration in China: practices, problems and policies. Popul. Res. Policy Rev., 2010. 29: 297–317.

Li, S., Feldman M.W. , Jin X., and D. Zuo. Gender, migration, and well-being of the elderly in rural China. Chapter 4 in K. Eggleston and S. Tuljapurkar (eds.) Aging Asia: Economic and Social Implications of Rapid Demographic Change in China, Japan, and South Korea. Stanford, CA: Shorenstein Asia-Pacific Research Center (distributed by Brookings Institution Press). To appear.

Li, S., Song L., and M.W. Feldman. Intergenerational support and subjective health of older people in rural China: a gender-based longitudinal study. Australasian J. Ageing, 2009. 28: 81–86.

Liu, Emily and Christopher Scott. (2014) Great Expectations: Autism Spectrum Disorder and Induced Pluripotent Stem Cell Technologies. Stem Cell Reviews and Reports. DOI: 10.1007/s12015-014-9497-0.

Liu Y.I., Wise P.H. and A.J. Butte. The "etiome": identification and clustering of human disease etiological factors. BMC Bioinformatics, 2009. 10(Suppl 2):S14.

Magnus D. Translating stem cell research: challenges at the research frontier. J Law Med Ethics, 2010. 38(2):267-76.

Magnus D., Cho M.K. and R. Cook-Deegan. Direct-to-consumer genetic tests: beyond medical regulation? Genome Med, 2009. 1:17.

Magnus D. The ethics of preimplantation genetic diagnosis. Fertility Today, 2005. 1(1).

McCormick JB, Boyce AM, Ladd JM, and Cho MK. Barriers to Considering Ethical and Societal Implications of Research: Perceptions of Life Scientists. AJOB Primary Research 3(3):40-50, 2012.

McCormick J. and S.S. Lee, eds. Capturing complexity: the scientific, societal and ethical meanings of "environment" in genetic research. BMC Genet, Special issue, in press.

McCormick J.B., Boyce A.M. and M.K. Cho. Biomedical scientists' perceptions of ethical and social implications: is there a role for research ethics consultation? PLoS ONE, 2009. 4(3): e4659.

McGuire A., Caulfield T. and M. Cho. Research ethics and the challenge of whole genome sequencing. Nat Rev Genet, 2007. 9:152-56.

McGuire A.L., Cho M.K., McGuire S.E. and T. Caulfield. The future of personal genomics. Science, 2007. 317(5845):1687.

McLaughlin R.M., Clarke Dur, T., Crawley .LM., Glaser, S. Are cancer registries unconstitutional? Social Science & Medicine, 2010. 70:1295-1300.

Meslin, E.M. and M.K. Cho. Research ethics challenges in the era of personalized medicine: updating science's contract with society. Public Health Genomics, 2010. 13:378-84.

Miller AC and Katrina Karkazis. "Health Beliefs and Practices in an Isolated Polygamist Community of Southern Utah." Journal of Religion and Health (2012): 1-13.

Milner LC and Cho MK. (2013). Focusing on Cause or Cure? Priorities and Stakeholder Presence in Childhood Psychiatry Research. AJOB Primary Research. DOI:10.1080/21507716.2013.811315.

Milner LC and Magnus D. (2013).  Can Informed Consent Go Too Far?  Balancing Consent and Public Benefit in Research.  American Journal of Bioethics 13(4): 1-2.

Milner LC, Liu EY, and Garrison NA. (2013). Relationships Matter: Ethical Considerations for Returning Results to Family Members of Deceased Subjects. American Journal of Bioethics 13(10): 66-67.

Monahan K., Cho M.K. and Sankar P.  (in press)  Race and ethnicity in genetics research publications: Analysis of journal attributes.  Journal of Science and Engineering Ethics.

Murdoch C.J. and C.T. Scott. Stem cell tourism and the power of hope. Am J Bioeth, 2010. 10(5): 16–23.

Murdoch C.J. and C.T. Scott. Response to open peer commentaries on "Stem cell tourism and the power of hope." Am J Bioeth, 2010. 10(5):W1-3.

Murphy ER and HT Greely.What Will Be the Limits of Neuroscience-Based Mindreading in the Law? in The Oxford Handbook of Neuroethics (ed. Judy Illes and Barbara Sahakian, Oxford Univ. Press, 2011).

Ormond KE and Cho MK. (2014). Translating personalized medicine using new genetic technologies in clinical practice: the ethical issues. Personalized Medicine, 11(2), 211-222.

Ormond KE, Hudgins L, Ladd JM, Magnus DM, Greely HT, and MK Cho. Medical and graduate students' attitudes towards personal genomics.  Genet Med 2011;13(5):400-8.

Ormond K.E., Smith M.E., Wolf W.A. The Views of Participants in DNA
Biobanks, 1 STAN. J. L. SCI. & POL’Y 80, 2010.
http://www.stanford.edu/group/sjlsp/cgi-bin/articles/index.php?CatID=1009

Ormond K.E., Wheeler M.T., Hudgins L., Ashley E.A., Altman R.B., Klein T., Greely H.T.
Clinical challenges in the coming genomic world. Lancet, 2010. 375:1749-51.
Published Online April 30, 2010 DOI:10.1016/S0140-6736(10)60599-5.

Ormond K.E., Cirino A.L, Helenowski I.B., Chisholm R.L. and W.A. Wolf. Assessing the understanding of biobank participants. Am J Med Genet A, 2009. 149A(2):188-98.

Ormond K.E., Banuvar S., Daly A., Iris M., Minogue J., and S. Elias. Information preferences of high literacy pregnant women regarding informed consent models for genetic carrier screening. Patient Educ Couns. 2009;75(2):244-250.

Owen-Smith J, Scott CT, McCormick JB. (2012) Expand and Regularize Federal Funding for Human Pluripotent Stem Cell Research. Journal of Policy Analysis and Management. doi/10.1002/pam.21607

Owen-Smith J, Scott CT, McCormick JB. (2012) Democracy is Working. Journal of Policy Analysis and Management. doi/10.1002/pam.21607

Pickrell, J.K., Coop G., Novembre J., Kudaravalli S., Li J., Absher D., Srinivasan B.S., Barsh G.S., Myers R.M., Feldman M.W., and J.K. Pritchard. Signals of recent positive selection in a worldwide sample of human populations. Genome Res, 2009. 19: 826–837.

Richardson, HS and Cho, MK (in press). Secondary Researchers' Duties to Return Incidental Findings and Individual Research Results: A Partial-Entrustment Account. Genetics in Medicine.

Rissman J., Greely H.T., and Wagner A.D., Detecting Individual Memories Through the Neural Decoding of Memory States and Past Experience, PROC. NAT'L ACAD. SCI., published ahead of print May 10, 2010, doi:10.1073/pnas.1001028107

Roberts LW, Warner TD, Moutier C, Geppert CMA, and KA Green Hammond. Are doctors who have been ill more compassionate? Attitudes of resident physicians regarding personal health issues and the expression of compassion in clinical care. (in press) Psychosomatics 2011.

Roberts LW, Warner TD, Smithpeter M, Rogers M, and R Horwitz. Medical students as patients: implications of their dual role as explored in a vignette-based survey study of 1027 medical students at 9 medical schools. (in press) Comprehensive Psychiatry 2011.

Rosenfeld JP and HT Greely.The P300 Event-Related Potential (ERP) in Detection of Deception:  Review and Legal Issues. ENCYCLOPEDIA OF FORENSIC SCIENCE (forthcoming 2011).

Salari K, Hudgins L, Karczewski KJ, Kim SK, Ormond KE. (2013). “Evidence that personal genome testing enhances student learning in a course on genomics and personalized medicine.” PLoS One. 8(7):e68853. DOI: 10.1371/journal.pone.0068853.

Sankar P., Cho M.K. and J. Mountain. Race and ethnicity in genetic research. Am J Med Genet, 2007. 143A(9):961-70.

Sayres, Lauren, Megan Allyse, Taylor A. Goodspeed, and Mildred K. Cho. (2014). Demographic and Experiential Correlates of Public Attitudes Towards Cell-Free Fetal DNA Screening.Journal of Genetic Counseling. DOI: 10.1007/s10897-014-9704-9.

Sayres LC, Allyse M, Norton ME, Cho MK. Cell-free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation. Prenatal Diagnosis 2011, epub ahead of print: DOI: 10.1002/pd.2835.

Sayres, Lauren, Megan Allyse, Taylor A. Goodspeed, and Mildred K. Cho. (July 2012). In the Public Interest? Sci Transl Med, Vol. 4, Issue 144: 144fs23 .

Sayres LC, Allyse M & Cho, MK. (2012) Integrating stakeholder perspectives into the translation of cell-free fetal DNA testing for aneuploidy. Genome Medicine. 4 (6), 49. 

Sayres L and D Magnus. Duty-Free: The Non-Obligatory Nature of Preimplantation Genetic Diagnosis. The American Journal of Bioethics, 2012. 12(4):1-2.

Sayres L and MK Cho. Cell-free fetal nucleic acid testing: A review of the technology and its applications.” Obstetrical and Gynecological Survey 2011; 66(7):431-42.

Sayres L, Allyse M, Norton M, and MK Cho. Cell-free fetal DNA testing: A pilot study of obstetric healthcare provider attitudes towards clinical implementation. Prenatal Diagnosis (accepted for publication).

Scott CT, Borgelt E, Lee S. (2014) The Time is Ripe for an Ethics of Entrepreneurship. Nature Biotechnology 32(4): 316-318. 

Scott CT, Caulfield T, Borgelt E, Illes J. (2012) Personalized Medicine: the new banking crisis. Nature Biotechnology. 30(2).

Scott CT, McCormick JB, Derouen MC, and J Owen-Smith. Democracy Derived? New Trajectories in Pluripotent Stem Cell Research. Cell 2011; 145 (6): 820-6.

Scott C.T., DeRouen M.C., Crawley L.M. The language of hope: Therapeutic intent in stem cell trials. AJOB Primary Research, 2010. 1(3):4-11.

Scott C.T., Owen-Smith J., McCormick J. We must reverse the Bush legacy of stem-cell problems. Nature, 2009. 460(7251):33.

Scott C.T., McCormick J.B., Owen-Smith J. And then there were two: use of hESCB lines.Nat Biotechnol, 2009. 27(8):696-7.

Sherkow JS and Scott CT. (2014) Myriad stands alone. Nature Biotechnology 32(7):620.

Simon BM, and CT Scott. Unsettled expectations: how recent patent decisions affect biotech. Nat Biotechnol 2011; 29 (3): 229-30.

Simon B., Murdoch C.E., and C.T. Scott. Pluripotent patents make prime time: an analysis. Nat. Biotechnol, 2009. http://www.nature.com/nbt/journal/v28/n6/full/nbt0610-557.html

Singh J., Illes J., Lazzeroni L. and J. Hallmayer. Trends in US autism research funding. J Autism Dev Disord, 2009. 39(5):788-95.

Singh J., Hallmayer J. and J. Illes. Interacting and paradoxical forces in neuroscience and society. Nat Rev Neurosci, 2007. 8(2):153-60.

Skene L., Testa G., Hyun I., Jung K.W., McNab A., Robertson J., Scott C.T., Solbakk J.H., Taylor P., and L. Zoloth. Ethics report on interspecies somatic cell nuclear transfer research. Cell Stem Cell, 2009. 5(1):27-30.

Tabor HK and MD Lappé. The Autism Genetic Resource Exchange: Changing Pace, Priorities, and Roles in Discovery Science, Chapter 4 in Wylie Burke, Kelly Edwards, Sara Goering, Suzanne Holland, Susan Trinidad Editors. Making Good on the Promise of Genetics: Justice in Translation.  New York: Oxford University Press 2011.

Tabor H.K. and M.K. Cho. Ethical implications of array comparative genomic hybridization in complex phenotypes: points to consider in research. Genet Med, 2007. 9(9):626-31.

Taymor K. and C.T. Scott. The practical consequences of a national human embryonic stem cell registry. Stem Cell Rev, 2009. 5(4):315-8.

Tischler R, Hudgins L, Blumenfeld YJ, Greely H, Ormond KE. (2011) “Noninvasive Prenatal Diagnosis: Pregnant Women’s Interest and Expected Uptake.”   Prenatal Diagnosis.

Tobin SL, Cho MK, Lee SS, Magnus DC, Allyse M, Ormond KE, and Garrison NA.. Customers or research participants?: Guidance for research practices in commercialization of personal genomics. Genet Med (2012) pp. 1-3.

Tobin S.L., Lee S.S.J., Greely H.T., Ormond K.E., and M.K. Cho. Not a loophole: commercial exploitation of an IRB error. PLoS Genetics, 2010. 6:12 July.

Valenzuela R.K., Henderson M.S., Walsh M.H., Garrison N.A., Kelch J.T., Cohen-Barak O., et al. Predicting phenotype from genotype: normal pigmentation. J Forensic Sci, 2010. [Epub ahead of print].

Vernez SL, Salari K, Ormond KE, Lee SS. 2013. Personal genome testing in medical education: student experiences with genotyping in the classroom. Genome Med19;5(3):24.

Vitti JJ, Cho MK ,Tishkoff SA & Sabeti PC (in press) Human evolutionary genomics: ethical and interpretive issues. Trends in Genetics.

Weatherford Darling K, Boyce AM, Cho MK and Sankar P (in press)  “What is the FDA going to think?”: Negotiating Values through Reflective and Strategic Category Work in Microbiome Science.  Science, Technology and Human Values.

Wolf SM, Crock BN, Van Ness B, Lawrenz F, et al. Managing incidental findings and research results in genomic research involving biobanks and archived data sets. Genet in Med, 2012. 1–24. doi:10.1038/gim.2012.23.

Wolf S.M., Lawrenz F.P., Nelson C.A., Kahn J.P., Cho M.K., Clayton E.W., et al. Managing incidental findings in human subjects research: analysis and recommendations. J Law Med Ethics, 2008. 36(2): 219-48.

Zarzeczny A., Scott C.T., Hyun I., Bennett J., Chandler J., Charge S., Heine H., Isasi R., Kato K., Lovell-Badge R., McNagny K., Pei D., Rossant J., Surani A., Taylor P.L., Ogbogu U., Caulfield T. iPS cells: mapping the policy issues. Cell, 2009. 139(6):1032-7

 

Stanford Medicine Resources:

Footer Links: