Stanford Center for
Biomedical Ethics

News & Publications

CIRGE has a newsletter!

For CIRGE publications, please see Publications.

For CIRGE news, please see below.

MAY 2014

MIT Technology Review, May/June 2014
--10 breakthrough technologies
This issue highlights the 10 most important technology milestones of the past year; brain mapping is included. Karl Deisseroth, the D.H Chen Professor, professor of bioengineering and of psychiatry and behavioral sciences, is featured for pioneering the technique CLARITY, which can convert biological systems into a fully transparent form, allowing researchers to visualize and study the brain's 3-D structure and circuitry using standard molecular probes. The piece also lists genome editing as one of the top breakthroughs; Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment.
http://www.technologyreview.com/featuredstory/526501/brain-mapping/
http://www.technologyreview.com/featuredstory/526511/genome-editing/

APRIL 2014

Scope, 04/24/14
--Medical students and author Khaled Hosseini share their muse with Stanford community
This blog entry provides a recap of Stanford's annual Medicine and the Muse symposium, which brought together medical student art, music, photography and literature in a series of performances and exhibits, and featured a talk with bestselling author Khaled Hosseini.
http://scopeblog.stanford.edu/2014/04/24/medical-students-and-author-khaled-hosseini-share-their-muse-with-stanford-community

04/15/14 - Former CIRGE Post-Bacc Jessica Erickson, CIRGE PI Mildred Cho, CIRGE Co-PI's Kelly Ormond and Douglas Levinson, and their colleagues punlished Genetic Testing of Children for Predisposition to Mood Disorders: Anticipating the Clinical Issues in the Journal of Genetic Counseling!

04/10/14 - SCBE Senior Research Scholar Katrina Karkazis co-authored the op-ed The Trouble With Too Much T in the New York Times!

04/10/14 - SCBE Senior Research Scholars Chris Scott and Sandra Lee and Former SCBE Project Manager Emily Borgelt published The Time is Ripe for an Ethics of Entrepreneurship in Nature Biotechnology!

04/09/14 - Former CIRGE Post-Doc Megan Allyse and her colleagues from Duke University published Noninvasive Prenatal Testing Goes Global in Science Translational Medicine!

04/09/14 - Former CIRGE Post-Bacc Lauren Sayres, Former CIRGE Post-Doc Megan Allyse, SCBE's Taylor Goodspeed, and CIRGE PI Mildred Cho published Demographic and Experiential Correlates of Public Attitudes Towards Cell-Free Fetal DNA Screening in Journal of Genetic Counseling!

March 2014

03/07/14 - CIRGE and SCBE's Megan Allyse, Lauren Sayres, Taylor Goodspeed and Mildred Cho published Attitudes towards non-invasive prenatal testing for aneuploidy among US adults of reproductive age in the Journal of Perinatology!

VICE (Motherboard), 03/05/14
CIRGE Program Manager Colleen Berryessa was featured in the article "Genetic Profiling and Predictive Policing Are Taking Us to the Pre-Crime Future" on VICE's science and technology blog. http://motherboard.vice.com/read/genetic-profiling-and-predictive-policing-are-taking-us-to-the-pre-crime-future

FEBRUARY 2014

Boston Globe, 02/26/14
--New study suggests prenatal genetic tests could be offered to all pregnant women
A new blood test offers pregnant women a safe and much more accurate way to screen for Down syndrome. Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment here and in a piece on Shots (NPR.org).
http://www.boston.com/news/science/blogs/science-in-mind/2014/02/26/new-study-suggests-prenatal-genetic-tests-could-offered-all-pregnant-women/Tux36jwTf50RLn2YDRuFyO/blog.html
http://www.npr.org/blogs/health/2014/02/26/282095202/blood-test-provides-more-accurate-prenatal-testing-for-down-syndrome

NBCNews.com, 02/05/14
--To catch a killer gene: Sisters race to stop mystery disease
This piece focuses on two sisters suffering from an unidentified, incurable genetic disorder, which also claimed several generations of family members. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE), provides comment. 
http://www.nbcnews.com/news/us-news/catch-killer-gene-sisters-race-stop-mystery-disease-n14451

Inside Stanford Medicine (online), 02/05/14
--5 Questions: David Magnus on understanding brain death
In this Q&A, David Magnus explains why he believes that the laws and ethics governing brain death should not be changed. Magnus is the Thomas A. Raffin Professor and director of the SCBE.
http://med.stanford.edu/ism/2014/february/5q-magnus-0205.html

02/04-14 - CIRGE Program Manager Colleen Berryessa published Judicial Perceptions of Media Portrayals of Offenders with High Functioning Autistic Spectrum Disorders in the International Journal of Criminology and Sociology!

02/03/14 - CIRGE Post-Bacc Emily Liu and SCBE Senior Research Scholar Christopher Scott published Great Expectations: Autism Spectrum Disorder and Induced Pluripotent Stem Cell Technologies in Stem Cell Reviews and Reports!

JANUARY 2014

VICE (Motherboard), 01/31/14
Hank Greely and Sandra Lee were featured in the article "Should the FDA Take a More Libertarian Stance Towards Personal Genomics?" on VICE's science and technology blog.
http://motherboard.vice.com/blog/should-the-fda-take-a-more-libertarian-stance-towards-personal-genomics

KTVU-TV, 01/30/14
This segment looked at how decisions are made about who does and does not get onto the wait list for a life-saving organ transplant. David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics, was interviewed. http://www.ktvu.com/news/news/health-med-fit-science/2-investigates-discrimination-organ-tranplant-cent/nc769/

01/21/14 - The 2013-2014 CIRGE Winter Newsletter is now available HERE!

01/16/14 - SCBE Senior Research Scholar Christopher Scott and his colleagues published Fit to Print? Media Accounts of Unproven Medical Treatments Across Time in AJOB Empirical Bioethics!

Time.com, 01/09/14
--Ariel Sharon: Lessons from his years in a coma
Former Israeli Prime Minister Ariel Sharon died Saturday after 8 years in a coma. This piece explores the line between what’s reasonable and what’s excessive when it comes to medical care for patients in vegetative states and quotes David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics.
http://healthland.time.com/2014/01/09/ariel-sharon-coma-lessons/

New York Times, 01/04/14
--A brain is dead, a heart beats on
This piece discusses the legal battle involving Jahi McMath, a 13-year-old Oakland girl who was declared brain dead after undergoing a tonsillectomy. David Magnus, the Thomas A. Raffin Professor in Medicine and director of the Stanford Center for Biomedical Ethics, provides comment here and in articles from the Associated Press, CBSNews.com and the San Francisco Chronicle. Paul Graham Fisher was appointed by Alameda County to be an independent reviewer into the case and is quoted in numerous articles, including the Los Angeles Times, NBCBayArea.com and USAToday.com. Fisher is the Beirne Family Professor of Pediatric Neuro-Oncology and chief of pediatric neurology.
http://www.nytimes.com/2014/01/04/us/a-brain-is-dead-a-heart-beats-on.html
http://www.sacbee.com/2013/12/31/6038537/qa-girls-brain-death-ignites-difficult.html
http://www.cbsnews.com/news/terri-schiavos-family-says-they-are-helping-jahi-mcmath-transfer-hospitals/
http://www.sfgate.com/default/article/Lack-of-brain-activity-separates-Jahi-McMath-from-5112290.php
http://www.latimes.com/local/lanow/la-me-ln-jahi-mcmath-stanford-neurologist-affirms-girl-is-brain-dead-20131224,0,5999349.story#axzz2pdLFMpO3
http://www.nbcbayarea.com/news/local/Third-Doctor-Declares-Jahi-McMath-of-Oakland-Legally-Dead-237179681.html
http://www.usatoday.com/story/news/nation/2013/12/24/brain-dead-teen-calif/4193359/

Time.com, 01/03/14
--Brain death really is death
This piece co-written by David Magnus discusses the definition of brain death. Magnus is the Thomas A. Raffin Professor in Medicine and director of the Stanford Center for Biomedical Ethics.
http://ideas.time.com/2014/01/03/why-brain-death-really-is-death/

DECEMBER 2013

VentureBeat.com, 12/31/13
--Stanford prof: Why I won't waste my money on a DNA test in 2014
In this piece, Hank Greely, with the Stanford Center for Biomedical Ethics, weighs in on the future of genetic testing.
http://venturebeat.com/2013/12/31/genetics-prof-why-i-wont-waste-my-money-on-a-dna-test-in-2014/

Forum (KQED-FM), 12/30/13
During this segment, physicians and ethicists, including David Magnus, discussed the Jahi McMath case and the definition of brain death.
http://www.kqed.org/a/forum/R201312301000

NOVEMBER 2013

Forum (KQED-FM), 11/26/13
The FDA has ordered 23andMe to halt all sales and marketing of its gene testing kits because of concerns that inaccurate results from the direct-to-consumer tests, or results that are not adequately understood by patients, could lead to dangerous decisions. Hank Greely, with the Stanford Center for Biomedical Ethics, was among the guests who discussed the FDA's orders and the future of personal gene tests.
http://www.kqed.org/a/forum/R201311260900 

Time.com, 11/12/13
--Boy, girl or intersex?
On Nov. 1, the German parliament passed a law that gives parents the option of leaving the gender blank on a child’s birth certificate. Katrina Karkazis, senior research scholar in the Stanford Center for Biomedical Ethics, provides comment in this story.
http://world.time.com/2013/11/12/boy-girl-or-intersex/

11/06/13 - CIRGE PI Mildred Cho co-authored Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate in PLoS Biology!

Morning Edition (NPR), 11/04/13
This piece discussed privacy issues related to getting your microbes analyzed. Hank Greely, with the Stanford Center for Biomedical Ethics, was interviewed.
http://www.npr.org/blogs/health/2013/11/04/240278593/getting-your-microbes-analyzed-raises-big-privacy-issues

OCTOBER 2013

United Academics Magazine, October 2013
--"Genes, Therapy & Identity: When We Cease Being Us?"
A paper by CIRGE Program Manager Colleen Berryessa and CIRGE PI Mildred Cho was featured in the article "Genes, Therapy & Identity: When We Cease Being Us?" in United Academics Magazine.
http://www.united-academics.org/magazine/plasticfantastic/genes-therapy-and-identity-when-we-cease-being-us/

10/16/13 - SCBE Senior Research Scholar Sandra Lee, SCBE Alumna Simone Vernez, CIRGE Co-Investigator Kelly Ormond, and Mark Granovetter published Attitudes towards Social Networking and Sharing Behaviors among Consumers of Direct-to-Consumer Personal Genomics in the Journal of Personalized Medicine!

10/02/13 - CIRGE Co-Investigator Hank Greely and CIRGE PI Mildred Cho published The Henrietta Lacks legacy grows in EMBO Reports!

SEPTEMBER 2013

09/30/13 - SCBE's 2013 AUTUMN NEWSLETTER IS HERE!

09/12/13 - Former CIRGE post-doc Lauren Milner, CIRGE post-bacc Emily Liu, and former CIRGE post-doc Nanibaa' Garrsion published Relationships Matter: Ethical Considerations for Returning Results to Family Members of Deceased Subjects in the American Journal of Bioethics!

San Jose Mercury News, 09/05/13
--Long-frozen embryo brings joy to adoptive parents
Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment in this story on the cryopreservation of embryos.
http://www.mercurynews.com/science/ci_24018720/long-frozen-embryo-brings-joy-adoptive-parents

Forum (KQED-FM), 09/03/13
-- The first hour of this morning’s program focused on the revival of extinct species and featured Hank Greely, with the Stanford Center for Biomedical Ethics. On Monday’s program, playwright and actress Anna Deavere Smith discussed her one-woman show "Let Me Down Easy,” and how her many interviews at Stanford’s medical school helped shape the production. http://www.kqed.org/a/forum/R201309030900
http://www.kqed.org/a/forum/R201309021000

AUGUST 2013

Washington Post, 08/26/13
--Baby boy is the first to result from new embryo screening technique
This story discusses the first child to be born after his parents screened the genomes of a batch of embryos for abnormalities, in an effort to pick the healthiest for implantation. Hank Greely, with the Stanford Center for Biomedical Ethics, is quoted.
http://www.washingtonpost.com/national/health-science/baby-boy-is-the-first-to-result-from-new-embryo-screening-technique/2013/08/26/43311396-e8c9-11e2-aa9f-c03a72e2d342_story.html

Palo Alto Weekly, 08/02/13
--Entering the brave new world of genomics 
s Stanford's work in genomics is the focus of this lengthy cover story. Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor in Genetics and director of the Stanford Center for Genomics and Personalized Medicine; Stephen Galli, the Mary Hewitt Loveless, M.D. Professor and center co-director; Atul Butte, associate professor of pediatrics and of genetics; David Magnus, the Thomas A. Raffin Professor and director of the Center for Biomedical Ethics, are all quoted, with Galli saying he's "never seen a more exciting time in medicine than now." http://www.paloaltoonline.com/news/show_story.php?id=30489

JULY 2013

07/22/13 - CIRGE program manager Colleen Berryessa, Nicole Martinez-Martin and CIRGE post-doc Megan Allyse published Ethical, Legal and Social Issues Surrounding Research on Genetic Contributions to Anti-Social Behavior in Aggression and Violent Behavior!

07/09/13 - Just out in Nature Biotechnology, with shout-outs to SCBE, including quotes, citations, and adaptations of the work featured in Prenatal Diagnosis! Plus a nice summary of the ELSI issues by CIRGE post-doc Megan Allyse and SCBE Senior Research Scholar Chris Scott! Allison M. Genomic testing reaches into the womb. Nature Biotechnology 31(7):595-601. Read here: http://cirge.stanford.edu/Allison_Genomic_Testing.pdf

Discover, July/August 2013
--Faroe Islands aim to sequence genes of entire country
The Faroe Islands is offering whole genome sequencing to every citizen who wants it. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE), provides comment in this magazine piece.
http://discovermagazine.com/2013/julyaug/01-faroe-islands-aim-to-sequence-genomes-healthcare#.UbszCJXsc4M

JUNE 2013

06/19/13 - CIRGE Post-Doc Lauren Milner and CIRGE PI Mildred Cho published Focusing on Cause or Cure? Priorities and Stakeholder Presence in Childhood Psychiatry Research in AJOB Primary Research!

TheScientist.com, 06/18/13
--Gene patents decision: Everybody wins
This piece discusses the Supreme Court's recent decision on gene patenting and features Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE). An Inside Stanford Medicine story also delves into the ruling and what it means for patient care; Greely; Douglas Blayney, the Ann and John Doerr Medical Director of the Stanford Cancer Institute and professor of medicine at the school; Mark Pegram, the Susy Yuan-Huey Hung Professor; Mildred Cho, professor of pediatrics and associate director of the SCBE; Michael Snyder, the Stanford W. Ascherman, MD, FACS, Professor in Genetics and director of Stanford's Center for Genomics and Personalized Medicine; Atul Butte, associate professor of pediatrics and of genetics; and Christopher Scott, senior research scholar in the SCBE and director of Stanford's Program on Stem Cells in Society, are all featured.
http://www.the-scientist.com/?articles.view/articleNo/36076/title/Gene-Patents-Decision--Everybody-Wins/
http://med.stanford.edu/ism/2013/june/genes-0618.html

--Independent Lens (PBS), 06/17/13
The Revolutionary Optimists, a documentary co-directed and co-produced by Maren Grainger-Monsen and Nicole Newnham, will air on the Emmy Award-winning series Independent Lens, hosted by Stanley Tucci, tonight at 10 p.m. on KQED. Grainger-Monsen is founder and director of the Program in Bioethics in Film at the Stanford Center for Biomedical Ethics. Newnham is an independent documentary filmmaker, currently a filmmaker-in-residence with the program.
http://med.stanford.edu/ism/2013/june/brief-optimists-0610.html
http://www.pbs.org/independentlens/

NationalGeographic.com, 06/14/13
--7 takeaways from Supreme Court's gene patent decision
This piece discusses the Supreme Court’s recent decision on gene patenting and what it means for patients and the biotech industry. Hank Greely, with the Stanford Center for Biomedical Ethics, is featured here.
http://news.nationalgeographic.com/news/2013/06/130614-supreme-court-gene-patent-ruling-human-genome-science/

Los Angeles Times, 06/14/13
--Researchers hail Supreme Court decision on gene patent
The U.S. Supreme Court yesterday issued their anxiously awaited decision in a case that raised the issue of whether companies like Salt Lake City-based Myriad Genetics, Inc. can patent genes, in this case, the BRCA1 and BRCA2 genes. The Court ruled that naturally isolated DNA is not patentable, but that synthetic DNA (such as the cDNA for the BRCA1 and 2 genes) is patentable. Euan Ashley, assistant professor of cardiovascular medicine, is quoted in this article. The decision is also discussed in stories from MIT Technology review, which quotes Hank Greely; Wired.com, which quotes Drew Endy, assistant professor of bioengineering; and entries on the Stanford blog Scope, which feature Carlos Bustamante, professor of genetics, and Jake Sherkow, a fellow at the Stanford Center for Law and Biosciences.
http://www.latimes.com/news/science/sciencenow/la-sci-sn-gene-patent-reaction-20130613,0,6083312.story
http://www.technologyreview.com/news/516101/us-supreme-court-says-natural-human-genes-may-not-be-patented/
http://www.wired.com/business/2013/06/wall-street-gene-patents/
http://scopeblog.stanford.edu/2013/06/13/reaction-on-gene-patenting-ruling-from-around-the-web/
http://scopeblog.stanford.edu/2013/06/13/a-closer-look-at-supreme-courts-decision-on-gene-patenting/

Forum (KQED), 06/14/13
This segment discussed the Supreme Court's decision on gene patenting. Mildred Cho, professor of pediatrics and associate director of the SCBE, talked about the decision and its implications.
http://www.kqed.org/a/forum/R201306140900

Science Friday (NPR), 06/07/13
This segment discussed the issue of genetic disclosures and just how much might be too much information for patients and doctors. Hank Greely, with the Stanford Center for Biomedical Ethics, and Kelly Ormond, director of the genetic counseling training program at Stanford, were featured on the program.
http://www.sciencefriday.com/segment/06/07/2013/whole-genome-scans-could-reveal-too-much.html

06/07/13 - "Bioethicists say criticisms of preemie oxygen study could have "chilling effect" on clinical research" -- The federal Office for Human Research Protections (OHRP) has decided to suspend sanctions it imposed earlier this year on a study of blood oxygen levels used to treat premature infants. Last week, a group of more than 40 of the country’s top bioethicists, including David Magnus, the Thomas A. Raffin Professor and director of the Stanford Center for Biomedical Ethics (SCBE), and Mildred Cho, professor of pediatrics and associate director of the SCBE, sent a letter to OHRP stating that the sanctions could have a chilling effect on much-needed clinical research.
http://scopeblog.stanford.edu/2013/06/06/bioethicists-say-criticisms-of-preemie-oxygen-study-could-have-chilling-effect-on-clinical-research/
http://www.nejm.org.laneproxy.stanford.edu/doi/full/10.1056/NEJMc1307008?query=featured_home

06/07/13 - "Second child placed on adult transplant list" -- Debate over the age restriction for lung transplants intensifies, as a second child is temporarily placed on the waiting list for adult lung recipients. David Magnus, director of the Center for Biomedical Ethics at Stanford University, and Howard M. Nathan of the Gift of Life Donor program discuss. http://video.msnbc.msn.com/thomas-roberts/52132786#52132786

06/06/13 - SCBE Project Manager Emily Borgelt, SCBE Senior Research Scholar Chris Scott, and UBC's Shafik Dharamsi published Dear Student: Stem Cell Scientists' Advice to the Next Generation in Cell Stem Cell!

Today Show (NBC), 06/05/13
A ten-year old girl is waiting for a lung transplant while struggling with cystic fibrosis. This segment discussed how national transplant rules don't allow children under the age of 12 to receive adult lungs. David Magnus, the Thomas A. Raffin Professor and director of the SCBE, was featured.
http://vitals.nbcnews.com/_news/2013/06/04/18754425-sebelius-wont-intervene-in-girls-transplant-case?lite

Forum (KQED-FM), 06/04/13
--On Monday the U.S. Supreme Court ruled that police may take DNA from people arrested in connection with serious crimes. Hank Greely, with the Stanford Center for Biomedical Ethics, was interviewed during this segment.
http://www.kqed.org/a/forum/R201306040900

06/04/13 - CIRGE Post-Doc Nanibaa' Garrison and two of her colleagues at UC Berkeley and University of Washington published Forensic familial searching: scientific and social implications in Nature Reviews Genetics!

06/04/13 - CIRGE PI Mildred Cho, former CIRGE Post-Bacc Lauren Sayres, and their colleagues from Duke published Commercial landscape of noninvasive prenatal testing in the United States in Prenatal Diagnosis!

06/04/13 - Stanford Genetic Counselor Megan Grove and SCBE's Maya Wolpert, Mildred Cho, Sandra Lee, and Kelly Ormond published Views of Genetics Health Professionals on the Return of Genomic Results in the Journal of Genetic Counseling!

Los Angeles Times, 06/03/13
--Supreme Court allows police to take DNA sample after an arrest
On Monday the U.S. Supreme Court ruled that police may take DNA from people arrested in connection with serious crimes. Hank Greely, with the Stanford Center for Biomedical Ethics (SCBE), provides comment in this story.
http://www.latimes.com/news/nationworld/nation/la-na-court-dna-20130604,0,5822431.story

MAY 2013

AAMC Reporter, May 2013
Audrey Shafer was quoted in this article about work life balance. https://www.aamc.org/newsroom/reporter/336402/work-life.html

Stanford Arts Institute, 05/29/13
http://artsinstitute.stanford.edu/music-and-medicine-an-interdisciplinary-approach-to-beethoven/-Music and Medicine: An Interdisciplinary Approach to Beethoven

05/22/13 - SCBE's Megan Allyse, Lauren Sayres, Molly Havard, Jaime King, Hank Greely, Louanne Hudgens, J. Taylor, Mary Norton, Mildred Cho, David Magnus and Kelly Ormond published Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing in Prenatal Diagnosis!

Morning Edition (NPR), 05/16/13
--The news that Ohio scientists have successfully cloned human embryos could lead to more legislation involving stem cell research. Hank Greely, with the Stanford Center for Biomedical Ethics, was interviewed for this segment.
http://www.npr.org/blogs/health/2013/05/16/184261714/cloning-stem-cells-long-mired-in-legislative-gridlock

Genetic Engineering & Biotechnology News, 05/09/13
--Your genes, your choice?
Some critics say the American College of Medical Genetics and Genomics’ recent recommendations for reporting incidental clinical sequencing results undermine patient autonomy. Posdoctoral scholars Megan Allyse and Marsha Michie provide comment in this article.
http://www.genengnews.com/insight-and-intelligence/your-genes-your-choice/77899812/

05/09/13 - CIRGE Post-Docs Megan Allyse and Marsha Michie published Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing in Trends in Biotechnology!

April 2013

MIT Technology Review, 04/23/13
--Prenatal DNA sequencing
This piece explores prenatal DNA sequencing, which is being featured as one of the 10 breakthrough technologies of 2013. Stephen Quake, the Lee Otterson Professor in the School of Engineering and professor of bioengineering, and Hank Greely, with the Stanford Center for Biomedical Ethics, are quoted.
http://www.technologyreview.com/featuredstory/513691/prenatal-dna-sequencing/

SCBE Senior Research Scholar Katrina Karkazis and Stanford medical student Katie Miller published Health Beliefs and Practices in an Isolated Polygamist Community of Southern Utah in the Journal of Religion and Health!

NPR, 04/19/13
The Supreme Court is currently hearing arguments on whether or not human genes can be patented. Mildred Cho, associate director of the Stanford Center for Biomedical Ethics, discussed the case against Myriad Genetics during this segment.

CIRGE Post-Doc Lauren Milner and SCBE Director David Magnus published Can Informed Consent Go Too Far? Balancing Consent and Public Benefit in Research in the American Journal of Bioethics!

Stanford Report, 4/8/13
http://news.stanford.edu/news/2013/april/greely-species-deextinction-040413.html
--Hank Greely on the ethics of resurrecting extinct species
Scientists predict that within 15 years they will be able to revive some recently extinct species, such as the dodo or the passenger pigeon, raising the question of whether or not they should – just because they can. Law Professor Hank Greely weighs in.

March 2013

Seattle Times, 03/28/13
--'The Revolutionary Optimists': A story of hope in Indian slums
“The Revolutionary Optimists," an award-winning documentary by Maren Grainger-Monsen and Nicole Newnham, is reviewed in this piece. The film chronicles the story of a lawyer-turned-social entrepreneur working to empower children living in Calcutta’s poorest neighborhood to become leaders in improving health and sanitation. Grainger-Monsen is director of the Program in Bioethics at the Stanford Center for Biomedical Ethics, and Nicole Newnham is a filmmaker and writer in the program.
http://seattletimes.com/html/movies/2020663449_movierevolutionaryxml.html

CIRGE Program Manager Colleen Berryessa and CIRGE PI Mildred Cho published Ethical, Legal, Social, and Policy Implications of Behavioral Genetics in the Annual Review of Genomics and Human Genetics!

February 2013

Stanford Daily, 02/01/13
--Hank Greely wins prestigious Lyman award
Hank Greely, with the Stanford Center for Biomedical Ethics, is the recipient of the Lyman Award, a prestigious honor given in recognition of faculty service by the Stanford Alumni Association.
http://www.stanforddaily.com/2013/02/01/hank-greely-wins-prestigious-lyman-award-2/

January 2013

01/31/13 - CIRGE post-doc Nanibaa' Garrison and CIRGE PI Mildred Cho published Awareness and Acceptable Practices: IRB and Researcher Reflections on the Havasupai Lawsuit in AJOB Primary Research!

Los Angeles Times, 01/18/13
--If your genome is public, so are you, researchers find
Using public websites, a team of researchers from the Whitehead Institute has uncovered the names of supposedly anonymous people who had their DNA analyzed for research purposes. Mildred Cho, professor of pediatrics, associate director of the Stanford Center for Biomedical Ethics and principal investigator of the Stanford Center for Integration of Research on Genetics and Ethics, provides comment in this article, which also appeared in the Chicago Tribune.
http://articles.latimes.com/2013/jan/18/science/la-sci-dna-privacy-20130118

01/16/2013 -- CIRGE Post-Doc Nanibaa' Garrison was featured in "Shifting Roles, Shifting Research: Collaborative Genetic Studies with Indigenous Communities!" in Society for Advancement of Chicanos and Native Americans in Science Winter Magazine, Winter/Spring 2013, Vol. 15, No. 2! http://sacnas.org/about/stories/sacnas-news/winter-2013/shifting-roles-shifting-research

01/16/13 - CIRGE post-doc Marsha Michie and her colleagues from UNC Chapel Hill and Wake Forest published "What Research Ethics Should Learn from Genomics and Society Research: Lessons from the ELSI Congress of 2011" in the Journal of Law, Medicine & Ethics! http://onlinelibrary.wiley.com/doi/10.1111/j.1748-720X.2012.00728.x/abstract

01/08/13 - CIRGE post-doc Nanibaa' Garrison published "Genomic Justice for Native Americans: Impact of the Havasupai Case on Genetic Research" in Science, Technology & Human Values! http://sth.sagepub.com/cosntent/early/2012/12/20/0162243912470009

December 2012

12/13/12 - CIRGE post-doc Megan Allyse published 23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent in Trends in Biotechnology!

November 2012

Forum (KQED), 11/26/12
--The UC Davis School of Medicine is the focus of several investigations after two of its doctors were found to have conducted experimental treatments on dying cancer patients without proper approval. David Magnus, the Thomas A. Raffin Professor in Medicine and Biomedical Ethics and director of the Stanford Center for Biomedical Ethics (SCBE) was part of a panel that discussed safe and ethical approaches to medical research involving the terminally ill.
http://www.kqed.org/a/forum/R201211260900

11/01/12 - CIRGE collaborator Jaime King published Politics and Fetal Diagnostics Collide in Nature!

OCTOBER 2012

10/16/12 - CIRGE Post-Doc Nanibaa' Garrison and SCBE Director David Magnus published The Instrumental Role of Hospital Ethics Committees in Policy Work in the American Journal of Bioethics!

10/09/12 - CIRGE Scholars Taylor A. Goodspeed, Megan Allyse, Lauren C. Sayres, Mary E. Norton, and Mildred K. Cho published Translating cell-free fetal DNA technology: structural lessons from non-invasive RhD blood typing in Trends in Biotechnology!

Des Moines Register, 10/08/12
--Another view: Candidates' silence on science is troubling
In this opinion piece, Christopher Scott discusses presidential candidate Mitt Romney's stance on stem cell research. Scott is director of Stanford’s Program on Stem Cells and Society and a senior research scholar at the Stanford Center for Biomedical Ethics.
http://www.desmoinesregister.com/article/20121008/OPINION01/310080032/Another-View-Candidates-silence-on-science-is-troubling

Los Angeles Times, 10/05/12
--Mouse stem cells used to produce eggs, Japanese scientists say
Researchers in Japan say they used mouse stem cells to create eggs and sperm, producing healthy offspring. The discovery could eventually aid human fertility. Renee Reijo Pera,
professor of obstetrics and gynecology and director of the Stanford Center for Reproductive and Stem Cell Biology, provides comment in this article. The research is also discussed in a piece from the Daily Telegraph (U.K.), which quotes Hank Greely from the Stanford Center for Biomedical Ethics.
http://www.latimes.com/health/la-sci-stem-cells-infertility-20121005,0,5337238.story
http://www.dailytelegraph.com.au/news/breaking-news/mice-skin-cells-turned-into-eggs-suggesting-new-fertility-treatments/story-e6freuz9-1226488841701

10/1/12 - Former CIRGE Post-Bacc Fellow Jessica Erickson and CIRGE PI Mildred Cho published Interest, rationale, and potential clinical applications of genetic testing for mood disorders: A survey of stakeholders in the Journal of Affective Disorders!

SEPTEMBER 2012

9/28/12 - Missed Duke Professor Robert Cook-Deegan's Sept. 28th CIRGE Speaking Event? A recording can be found HERE!

Morning Edition (NPR), 09/25/12
--This segment discussed a family's experience with whole-genome sequencing. Hank Greely, with the Stanford Center for Biomedical Ethics, was featured.
http://www.npr.org/blogs/health/2012/09/25/160957147/doctors-sift-through-patients-genomes-to-solve-medical-mysteries

AUgust 2012

8/30/12 - CIRGE post-doc Marsha Michie and scholars from UNC and Duke have published "Am I a control?: Genotype-driven research recruitment and self-understandings of study participants" in Genetics in Medicine!

Reuters, 8/29/12
--Neuroscience in court: My brain made me do it
This piece discusses how neuroscientific evidence is increasingly being used in court. Hank Greely, with the Stanford Center for Biomedical Ethics, provides comment.
http://in.reuters.com/article/2012/08/29/neuroscience-crime-idINDEE87S04920120829

MIT Technology Review, 8/29/12
--New tests could divine a baby's genome before birth
Scientists can now sequence the entire genome of a fetus from samples of a pregnant woman’s blood, several recent studies have shown. Mildred Cho, associate director of the SCBE, is quoted in this article.
http://www.technologyreview.com/news/428791/new-tests-could-divine-a-babys-genome-before/

Los Angeles Times,08/23/12
--Children of older fathers prone to certain disorders, study says
Men who become fathers later in life pass on more new genetic mutations to their children, increasing the risk of autism and schizophrenia, according to new research from the University of Iceland. Hank Greely, of SCBE and CIRGE, provides comment in this article!

NY Times, 8/16/12
--Study of Judges Finds Evidence From Brain Scans Led to Lighter Sentences
The findings of the study “The Double-Edged Sword: Does Biomechanism Increase or Decrease Judges' Sentencing of Psychopaths?” done by CIRGE Alum Teneille Brown and her colleagues at the University of Utah are discussed by the NY Times in this article!

JULY 2012

Booster Shots (LATimes.com), 07/25/12
--Fetal DNA tests: Will patents work against patients?
This article discusses how patenting and licensing for fetal DNA testing could have serious consequences for technology advances and benefits to public health. The issue was the subject of a paper co-authored by Mildred Cho, associate director of the SCBE, and Megan Allyse.
http://www.latimes.com/health/boostershots/la-heb-fetal-dna-tests-patents-20120725,0,5107237.story
http://stm.sciencemag.org/content/4/144/144fs23

Huffington Post, 07/26/12
--Optogenetics: A novel technology with questions old and new
This piece focuses on some of the questions posed by optogenetics, a technique that combines genetic engineering of brain cells with fiber optics. Karl Deisseroth, associate professor of bioengineering and of psychiatry and behavioral sciences, pioneered the technology and is quoted here. Lauren Milner and Megan Allyse, postdoctoral scholars in the Stanford Center for Biomedical Ethics (SCBE), also provide comment.
http://www.huffingtonpost.com/ruth-starkman/optogenetics-a-new-techno_b_1700219.html

Former, CIRGE Post-Baccalaureate fellow Lauren Sayres, CIRGE Post-Doctoral Fellow Megan Allyse. CIRGE PI Midred Cho, and Taylor A. Godspeed published In the Public Interest? in Science Translational Medicine.

JUNE 2012

CIRGE Post-Doctoral Fellow Nanibaa' Garrison contributed to a genetics resource through the American Indian & Alaska Native Genetics Resource Center. Click here for her section on cases involving tribes and genetics research.

CIRGE PI Mildred Cho and CIRGE Alumnae Jennifer McCormick, Angie Boyce, and Jennifer Ladd published Barriers to Considering Ethical and Societal Implications of Research: Perceptions of Life Scientists in the American Journal of Bioethics Primary Research.

CIRGE Scholars published Customers or Research Participants? Guidance for Research Practices in Commercialization of Personal Genomics in Genetics in Medicine.

May 2012

CIRGE Scholars, Lauren Sayres and David Magnus, published Duty-Free: The Non-Obligatory Nature of Preimplantation Genetic Diagnosis in the American Journal of Bioethics.

CIRGE Scholars, Sandra Lee and Simone Vernez, published Assessing the Pedagogical Goals of Self-Testing in Evaluating the Consultation Needs of Different Student Populations in the American Journal of Bioethics.

March 2012

CIRGE PI, Mildred Cho, co-authored Managing Incidental Findings and Research Results in Genomic Research Involving Biobanks and Archived Data Sets in Genetics in Medicine.

february 2012

CIRGE PI, Mildred Cho, and Henry Richardson published Secondary Researchers' Duties to Return Incidental Findings and Individual Research Results: a Partial-Entrustment Account in Genetics in Medicine.

CIRGE Scholar Joanna Fanos published New "first families": the psychosocial impact of new genetic technologies in Genetics in Medicine.

CIRGE Scholar Chris Scott and co-authors published Personal Medicine - the New Banking Crisis in Nature Biotechnology.

Congratulations to Ellen Farrelly on publishing her Master's project! Genetic Counseling for Prenatal Testing: Where is the Discussion about Disability? has been published in Journal of Genetic Counseling.

CIRGE PI, Mildred Cho, co-authored Human Evolutionary Genomics: Ethical and Interpretive Issues, published in Trends in Genetics.

January 2012

Congratulations to Reana Tischler on publishing her Master's project! Noninvasive Prenatal Diagnosis: Pregnant Women's Interest and Expected Uptake has been published in Prenatal Diagnosis.

CIRGE Scholars Molly Havard, Mildred Cho, and David Magnus published Triggers for Research Ethics Consultation in Science and Translational Medicine.

December 2011

CIRGE Post-Baccalaureate Fellow, Jessica Erickson, and PI Mildred Cho published Ethical Considerations and Risks in Psychiatric Genetics: Preliminary Findings of a Study on Psychiatric Genetic Researchers in AJOB Primary Research.

November 2011

CIRGE Post-Doctoral Fellows Megan Allyse and Lauren Milner were cited in The Military's DNA in Genome Technology.

September 2011

CIRGE Post-Baccalaureate Fellow, Lauren Sayres, and PI Mildred Cho published Cell-Free Fetal Nucleic Acid Testing: A Review of the Technology and its Applications in Obstetrical and Gynecological Survey.

AUGUST 2011

CIRGE Scholars Megan Allyse, Lauren Milner, and Mildred Cho published The G.I. Genome: Ethical Implications of Genome Sequencing in the Military in Nature Reviews Genetics.

JULY 2011

CIRGE Scholars Lauren Sayres, Megan Allyse, Mildred Cho, and Laura Roberts published Cell-free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation in Prenatal Diagnosis.

CIRGE Collaborator Joachim Hallmayer and colleagues published Genetic Heritability and Shared Environmental Factors Among Twin Pairs with Autism in Archives of General Psychiatry.

Hallmayer and co-authors provided comment on NPR's Forum program. Click here to listen.

JUNE 2011

Please welcome our new CIRGE summer research assistants: Seanan Fong, Taylor Goodspeed, Catherine Nguyen, and Alex Whitford.

CIRGE Scholar Chris Scott and CIRGE Alumna Jennifer McCormick and colleagues published Democracy Derived? New Trajectories in Pluripotent Stem Cell Research in Cell.

MAY 2011

CIRGE PI Mildred Cho and CIRGE Scholars Kelly Ormond, Louanne Hudgins, Jenn Ladd, David Magnus, and Hank Greely published Medical and Graduate Students' Attitudes Towards Personal Genomics in Genetics and Medicine.

April 2011

All CIRGE Fellows presented their research at the ELSI Congress in Chapel Hill, NC. A full conference program can be found here.

JANUARY 2011

CIRGE Scholar Hank Greely published Get Ready for the Flood of Fetal Gene Screening in Nature.

November 2010

CIRGE PI Mildred Cho and Program Manager Maya Wolpert published Not Yet in Sequence: Clinical, technical, ethical questions linger over personal genomics in Modern Healthcare.

OCTOBER 2010

CIRGE Alumna Teneille Brown and Kelly Lowenberg published Biobanks, Privacy, and the Subpoena Power in the Stanford Journal of Law, Science, and Policy.

CIRGE PI Mildred Cho published Patently unpatentable: implications of the Myriad court decision on genetic diagnostics in Trends in Biotechnology.

Post-Doctoral Scholar Nanibaa' Garrison moderated a panel on Native American views of Genetic Research at the ACMG Clinical Genetics Meeting in March. Her report is available here.

SEPTEMBER 2010

CIRGE is pleased to welcome new Post-Doctoral Fellow, Lauren Milner.

CIRGE scholar Chris Scott commented on the use of human tissue created from stem cells to identify potentially dangerous side-effects from drugs under development before undergoing expensive human trials. Click here to read more.

AUGUST 2010

CIRGE is pleased to welcome new Post-Baccalaureate Fellow, Jessica Erickson.

CIRGE scholar Hank Greely discussed UC Berkeley's Genetic Testing Program on National Public Radio.

JULY 2010

The Coming Revolution in Prenatal Genetic Testing, by CIRGE scholars Hank Greely and Jaime King, has been published in the Professional Ethics Report, a publication of the American Association for the Advancement of Science.

Synthetic "Life," Ethics, National Security, and Public Discourse, by CIRGE scholar Mildred Cho and David Relman, has been published in Science.

JUNE 2010

CIRGE is pleased to welcome new fellows and staff!

  • Post-Doctoral Fellow Megan Allyse will receive her Ph.D. in Sociology and Social Policy from the University of Nottingham. Her research interests include inter-cultural normative dialogue and the socio-cultural impacts of emerging technologies.
  • Post-Baccalaureate Fellow Lauren Sayres graduated from Stanford with a BA in Human Biology.
  • Program Manager Maya Wolpert graduated from Stanford with a BA in Human Biology.

CIRGE Scholars Sally Tobin, Sandra Lee, Hank Greely, Kelly Ormond, and Mildred Cho published a response to a PLoS Genetics article (Web-Based, Participant-Driven Studies Yield Novel Genetic Associations for Common Traits) and editorial (Consent and Intrenet-Enabled Human Genomics). Their response is entitled Not a Loophole: Commercial Exploitation of an IRB Error and can be found here.

MAY 2010

The CIRGE/CLB Conference was a success. Audio recordings and select speaker PowerPoint presentations are posted here.

CIRGE Scholar Hank Greely discussed direct-to-consumer personal genetic tests on MSNBC Nightly News and in the StarTribune.

Stem cell tourism and the power of hope by CIRGE Scholars CJ Murdoch and Chris Scott has been published in the American Journal of Bioethics.

 

CIRGE scholars Atul Butte, Kelly Ormond, Louanne Hudgins, Hank Greely, Russ Altman and others published Clinical Evaluation Incorporating a Personal Genome in Lancet.

APRIL 2010

CIRGE has moved! Please note the change in our address to 1215 Welch Road, Modular A, Stanford, CA  94305-5417. All phone numbers will remain the same.

MARCH 2010

CIRGE Postdoctoral Fellow Nanibaa' Garrison was interviewed on the Native America Calling radio station about genetic testing in Native America. Listen here to the March 31, 2010 segment.

CIRGE is pleased to welcome applications for a new Program Manager, two Postbaccalaureate Fellows and two Postdoctoral Fellows. For more information, please visit our Employment Opportunities page under "Center Activities."

Predicting Phenotype from Genotype: Normal Pigmentation* by CIRGE Scholar Nanibaa' Garrison has been published in the Journal of Forensic Sciences.

DECEMBER 2009

The "how" and "whys" of research: life scientists' views of accountability by CIRGE Scholars Jennifer Ladd, Martine Lappé, Jennifer McCormick, Angie Boyce and Mildred Cho has been published in the Journal of Medical Ethics.

November 2009

CIRGE Scholars Mildred Cho and Jennifer Ladd presented Maren Grainger-Monsen's new film Citizen Scientists at the November 2009 Public Responsibility in Research & Medicine advancing ethical research conference.

October 2009

CIRGE would like to welcome new postdoctoral fellow Nanibaa' Garrison. Nanibaa's research interests include personal genomics, human genetic ancestry and evolutionary history, and issues with privacy and confidentiality.

September 2009

CIRGE would like to welcome new postdoctoral fellow CJ Murdoch. CJ is also part of the SCBE Program on Stem Cells in Society and the Stanford Law School Center for Law and the Biosciences. CJ will work on ethical and legal issues in stem cell research and behavioral genomics.

AUGUST 2009

CIRGE Scholar David Magnus discussed the necessity for health care reform in a recent Stanford Medicine podcast.

JULY 2009

CIRGE wishes former postdoctoral fellow Teneille Brown much luck and success in her new position as Associate Professor of Law at S.J. Quinney College of Law, University of Utah.

CIRGE Scholars Kelly Ormond and Hank Greely voiced cautions about direct-to-consumer genetic testing in the ACP Internist.

In a local paper, CIRGE Scholar Mildred Cho commented on the complexity of the health care system.

CIRGE Scholar Sandra Lee presented her work on social networking and direct-to-consumer genomics at the July 2009 Genetics & Ethics in the 21st Century conference.

In a local paper, CIRGE Scholar Sandra Lee commented on the need for federal regulations for companies offering direct-to-consumer genetic testing.

In a local paper, CIRGE Scholar Hank Greely commented on the practice of banking newborn blood samples.

The Illusive Gold Standard in Genetic Ancestry Testing has been published by CIRGE Scholar Sandra Lee in Science.

JUNE 2009

Research 2.0: Social Networking and Direct-to-Consumer (DTC) Genomics has been published by CIRGE Scholars Sandra Lee and LaVera Crawley in the American Journal of Bioethics.

Revisiting Race in a Genomic Age, edited by CIRGE Scholar Sandra Lee along with Barbara Koenig and Sarah Richardson, received high praise in a recent Science book review.

ApRIL 2009

"Biobanks, privacy, and the subpoena power" by CIRGE Scholar Teneille Brown, with Kelly Lowenberg, has been accepted for publication in the Stanford Journal of Science Policy and Law.

"Through A Scanner Darkly – functional neuroimaging as evidence of a criminal defendant’s past mental states" by CIRGE Scholar Teneille Brown, with Emily Murphy, has been accepted for publication in Volume 62 of the Stanford Law Review.

Please visit Active Areas of Research to find descriptions of current CIRGE projects including the newest endeavor, Judiciary Perspectives on the Genetics of Alcohol Use Disorders.

MARCH 2009

Biomedical scientists' perceptions of ethical and social implications: is there a role for research ethics consultation? by CIRGE Scholars Jennifer McCormick, Angie Boyce and Mildred Cho has been published online at PLoS ONE.

February 2009

The "etiome": identification and clustering of human disease etiological factors by CIRGE Scholars Paul Wise and Atul Butte, with Yueyi Liu, has been published in BMC Bioinformatics.

CIRGE Scholar David Magnus has commented on the birth of the CA octuplets in The Washington Post and in Telegraph.co.uk.

Direct-to-consumer genetic tests: beyond medical regulation? by CIRGE Scholars David Magnus and Mildred Cho, with Robert Cook-Deegan, has been published in Genome Medicine.

January 2009

Translating genomics into the clinic: moving to the post-Mendelian world by CIRGE Scholar Mildred Cho has been published in Genome Medicine.

Assessing the Understanding of Biobank Participants by CIRGE Scholar Kelly Ormond, et al. has been published in the American Journal of Medical Genetics Part A.

Racing forward: the Genomics and Personalized Medicine Act by CIRGE Scholar Sandra Lee and HumBio student Ashwin Mudaliar has been published in Science.

Race and ancestry in biomedical research: exploring the challenges by CIRGE Scholar Sandra Lee and others has been published in Genome Medicine.

DeCember 2008

Several presentations from the CIRGE 2006 Interpreting Complexity and 2008 Capturing Complexity Symposia are now featured on Nature Precedings as highlighted collections. Videos of the presentations are also linked from Nature Precedings to GoogleVideo.


Professor and CIRGE scholar Hank Greely commented on the issue of cognitive enhancement in a December 8, 2008 USNews.com article. He was also the coauthor of a December 7, 2008 Nature commentary on the topic.

November 2008

Research ethics consultation: the Stanford experience, by CIRGE scholars Mildred Cho, Sally Tobin, Hank Greely, Jen McCormick, Angie Boyce and David Magnus, was published in IRB: Ethics & Human Research.

OcTOber 2008

CIRGE scholars Mildred Cho, Hank Greely and Teneille Brown were all quoted in the WSJ article entitled Gene Screen: Will we Vote Against a Candidate's DNA?


CIRGE scholar Dr. Maren Grainger-Monsen presents her newest documentary film entitled Citizen Scientists at the ASBH 10th Annual Meeting.


Professor Hank Greely comments on the use of neuroscience and brain imaging in the court system in an October 17th article in the San Francisco Chronicle.

August 2008

Videos and transcripts from the 2008 Capturing Complexity Symposium are now available here.


Recent publications by CIRGE scholars include:
Perceived Medical Discrimination and Cancer Screening Behaviors of Racial and Ethnic Minority Adults

The Ethics of Characterizing Difference: Guiding Principles on Using Racial Categories in Human Genetics

Strangers at the Benchside: Research Ethics Consultation

August 2007

CIRGE is pleased to welcome a new postdoctoral fellow, Teneille Brown, to the Center. Teneille graduated from the University of Michigan law school in 2004 and then practiced law at Latham & Watkins, LLP in Washington DC. Her work at the Center will focus on the intersection between behavioral genetics and the law, including the admissibility of genetics data in the courtroom.

May 2007

CIRGE's Bio-Medical Ethics Reference Server (BMERS) is now live. BMERS is a tool for collecting, annotating, and sharing references and research on bio-medical ethics. If you are a researcher in biomedical ethics and would like an account, please contact the Center for more information.

March 2007


All presentations from the CIRGE 2006 Symposium entitled Interpreting Complexity: the Scientific and Social Meaning of Behavioral Genetics are now available as streaming video (Quicktime player needed).  Start by viewing the introduction by Dr. Mildred Cho.

February 2007


Jennifer Singh, Joachim Hallmayer, and Judy Illes have published a paper entitled Interacting and Paradoxical Forces in Neuroscience and Society in Nature Reviews Neuroscience. This paper discusses autism in the context of other case studies in the history of neuroscience.

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