Stanford Center for
Biomedical Ethics–

Major Bioethics Reports

AAAS and The Hastings Center: Behavioral Genetics Project Publications (2004, 2005)
http://www.aaas.org/spp/bgenes/publications.shtml

The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research (1979)
http://ohsr.od.nih.gov/guidelines/belmont.html

CDC: Genomics and Population Health: United States 2003
http://www.cdc.gov/genomics/activities/ogdp/2003.htm
(Please see Chapter 8 for ELSI discussion)

International Bioethics Committee: Bioethics and Human Population Genetics Research (1995)
http://portal.unesco.org/shs/en/ev.php-URL_ID=2303&URL_DO=DO_TOPIC&URL_SECTION=201.html

International Bioethics Committee: Human Genetic Data: Preliminary Study by the IBC on its Collection, Processing, Storage and Use (2002)
http://portal.unesco.org/shs/en/ev.php-URL_ID=2138&URL_DO=DO_TOPIC&URL_SECTION=201.html

NHGRI: Genetic Information and the Workplace (1998)
http://www.genome.gov/10001732

NHGRI: Promoting Safe and Effective Genetic Testing in the United States: Final Report of the Task Force on Genetic Testing (1997)
http://www.genome.gov/10001733

NHGRI: Protecting Human Research Subjects (1993)
http://www.genome.gov/10001752

NHGRI: Report on The Joint NIH/DOE Committee to Evaluate the Ethical, Legal, and Social Implications Program of the Human Genome Project (Committee Appointed 1996)
http://www.genome.gov/10001745

NHGRI: Studying Interactions Among Social, Behavioral and Genetic Factors in Health (2001)
http://www.genome.gov/10001662

NHGRI: A Vision for the Future of Genomics Research (2003)
http://www.genome.gov/11007524

Nuffield Council on Bioethics: the Ethics of Patenting DNA (2002)
http://www.nuffieldbioethics.org/go/ourwork/patentingdna/publication_310.html

Nuffield Council on Bioethics: Genetic Screening: Ethical Issues (1993)
http://www.nuffieldbioethics.org/go/ourwork/geneticscreening/publication_297.html

Nuffield Council on Bioethics: Genetics and Human Behaviour: the Ethical Context (2002)
http://www.nuffieldbioethics.org/go/ourwork/behaviouralgenetics/publication_311.html

Nuffield Council on Bioethics: Mental Disorders and Genetics: the Ethical Context (1998)
http://www.nuffieldbioethics.org/go/ourwork/mentaldisorders/publication_300.html

The Nuremberg Code (1949)
http://ohsr.od.nih.gov/guidelines/nuremberg.html

Secretary's Advisory Committee on Genetic Testing: A Public Consultation on Oversight of Genetics Tests (2000)
http://www4.od.nih.gov/oba/sacgt/reports/Public_Consultation_document.htm

The World Medical Association Declaration of Helsinki (Note of Clarification Added 2004)
http://www.wma.net/e/policy/b3.htm

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